Newborn Developmental Follow-Up Program at Yale New Haven Children's Hospital at Bridgeport
The goal of the Newborn Developmental Follow-Up Program, founded by Dr. Christine Butler, Assistant Clinical Professor of Pediatrics, Yale University School of Medicine, is to help infants born prematurely to reach their full potential. The program is directed by Dr. Christine Butler and supported by Elisabeth Schneider, LMFT, coordinator of the Newborn Developmental Follow-Up Program. Infants are screened using the IDA Infant and Toddler Development assessment and the Bayley Scales for Development Assessment. The program sees infants born less than 32 weeks, under 3 lbs. 5 oz, with complex medical diagnoses including:
- Hypoxic ischemic encephalopathy
- Intrauterine growth restriction – IUGR
- Intraventricular Hemorrhage (IVH), periventricular hemorrhage (PVH)
- Meningitis
- Seizure
- Neonatal stroke
- Hydrocephalus
- Hypotonia or hypertonia
- Abnormal neurological exam at discharge
- Neonatal Opioid Withdrawal or Neonatal Abstinence Syndrome in preemies
Assessment Screening
The screening includes a medical assessment which includes a neurological examination and assessment, nutritional assessment to ensure appropriate growth, and most importantly, a developmental assessment to identify challenges with cognitive, motor, language, and social skills. After review, referrals to additional services are made and follow-up care provided over a period of three years to chart improvement in deficits that are identified. Referrals to psychosocial resources are made to support parents and family functioning including social determinants of health screening and emotional support.
Most common diagnosis and referrals include:
Medical: Feeding challenges, Failure to thrive, Cerebral palsy (ophthalmologist, audiologist, orthopedics, gastroenterology and others as needed. Continuous collaboration with pediatrician is always a part of the program)
Developmental: Cognitive, Speech or Motor Delay; Autism (Occupational therapy, speech and feeding therapy, physical therapy)
Psychosocial: Emotional support, Housing, Food/diaper Need, GED/work/immigration
Thanks to the support from a private foundation we have:
- Patient outcomes include in 2023 approximately 70% of our patients were in the normal range at their final visit and three had only slight language delays but were otherwise typical.
- We have a patient compliance rate of 96% (average for country is 50%)
- We have patient attrition of only 3%
- Patient compliance:
- Addition of 2-month post discharge visit
- Addition of 3-year visit to make sure infant is set up for preschool/day care
- Increased accessibility of program
- Increased follow up support to make sure referrals are completed and to provide psychosocial supports and social determinants of health